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May 20, 2014

Families raise funds at annual mud run

Lindsay — The third annual “Mo-o-ving Thru’ the Mud with Landon”  held Saturday at the Circle N Dairy in Lindsay  raised over $25,000 in Landon Tipps name for research for Hypothalamic hamartoma.

Hypothalamic Hamartoma (HH) is a type of rare, benign (noncancerous) tumor that occurs at a rate of 1 in every 200,000 people. Because they are so rare, hypothalamic hamartomas can be extremely difficult to diagnose and treat. Tipps was diagnosed with the disease when he was four and a half.

 Landon, who will turn nine next month, has had several operations in his lifetime and will face another one in the near future.

Grandmother, Kathi Kirby of Gainesville said that each year, the event has grown in money raised and in the number of kids participating between the ages of four and 14.

“This year, we had over 650 kids participating, about 150 more than last year,” Kirby said. “Since the first event three years ago, the amount of money raised has also gone up over $5000 each year.”

The event this year had families coming from as far away as North Carolina and Phoenix, Arizona to participate and support Landon and the event’s efforts to raise awareness and promote research for a cure for HH.

Kirby said that the Duncan family from North Carolina and their daughter, Ezri, who also suffers from HH were on hand to lend their spirit and support.

Lisa Solspy and her 16 year old son, CJ, traveled from Phoenix Ariz. to be on hand at the event and cheered on the participants after a sea of green balloons, Landon’s favorite color, were launched into the air kicking off the event.

Phoenix Arizona is the city where many of Landon’s surgeries have taken place at the Barrow Neurological Institute (BNI). BNI is one of a few hospitals in the world that perform highly technical surgeries to remove these mysterious hypothalamic hamartomas.

Scientists and doctors have discovered that HH appears to begin in the sixth or seventh week of gestation, why no one seems to know just yet.

 “At one of Landon’s surgeries in Phoenix, Lisa Solspy came and sat with Wendi Tipps, Landon’s mother,” Kirbi said. “During these trying times we have all become family in support of finding a cure for HH.”

“Landon had a great time Saturday,” Kirby said. “At first he didn’t want to get muddy but he finally got into it and had a blast.”

Kirby said that Landon has been experiencing new seizures and the upcoming surgery will hopefully help with this.

“You know, we trust in God to get us through the difficult times,” Kirby said. “It is not easy but we are coming out stronger.  Each year our family gets just a little bigger by uniting with others to fight this disease.”

“Having fun and getting a little muddy may just be instrumental in defeating HH,” Kirby said. “We keep hoping and praying and yes, each year we will keep moving through the mud with Landon until we find that cure.”

 

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The new Bosco’s Gym facility located at 1112 E. Main St. in Gainesville is up and running with state-of-the-art equipment and training available. Owner Sarah Galvan is excited about the new center that offers long time patrons as well as new members a place to rejuvenate and get fit. The estimated 7000 square foot facility houses an extensive weight room, work out space, treadmills, a cardio vascular area, aerobics, spin cycle room, two personal training rooms as well as a childcare facility. Hours of operation are 6 a.m. to 10 p.m. Monday through Thursday, 6 a.m. to 8 p.m. Friday, 8 a.m. to 3:30 p.m. Saturday and 1 p.m. to 5 p.m. Sunday.

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In the photo above, Dr. Matthew Bayne and his staff stand outside Family Dental Care of Gainesville.

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